May Evers is the founder of an online platform dedicated to people with Parkinson's disease. Since her Parkinson's diagnosis in 2014, Evers has been involved in several associations and foundations to raise awareness of the disease in society.
May Evers
private
Since her own Parkinson's diagnosis, May Evers has been involved at various levels for people who have to live with Parkinson's disease. Together with Christoph De Martin, she founded the online platform "Team Dopamin", where affected people and relatives of patients can talk about their disease and exchange information. As a contact person for the association "Jung und Parkinson e. V." and a member of the Hilde Ulrichs Foundation for Parkinson's Research, she supports self-help for Parkinson's patients as a patient representative.
She is also active in a dance company and dance projects for people with Parkinson's, as dancing offers opportunities to maintain and rebuild the mobility of affected people and enables joie de vivre as well as social contact with other Parkinson’s patients.
Further information: May Evers | Hilde-Ulrichs-Stiftung (aktive-parkinsonstiftung.de)
Parkinson's is a progressive chronic disease caused by the loss of dopamine cells. After introducing the disease and its symptoms, I will talk about the disappointed hopes of German people affected by Parkinson's and describe the lack of understanding about the impossibility of research in Germany from the perspective of people with Parkinson's.
(Translation from German)